Bye Bye Adenoids!!!

Todd and I are happily to announce that Tyse had to have his adenoids taken out. Hopefully, this is the golden ticket that we are looking for. We are hoping to get our baby boy Tyse back and he will start feeling like his normal self again. The doctors at Riley Hospital tried convincing Todd and I that Tyse would grow into his adenoids, but they were surprised to see that they were obstructive. I am told by a couple of doctors that if you have enlarged adenoids that you will have a lot of ear infections, but he hasn’t had one. His sleep study also showed mild apnea so Tyse just proved to everyone that it is good to do more testing and not to assume off of basics.

His surgery lasted a half hour and it went by fast. The doctor told us that Tyse is in recovery and that we were able to see him in thirty minutes or so. Todd and I decided to go have lunch. I called family members to let them know that Tyse’s surgery went well. Todd and I came back up to the waiting room and waited over an hour. I knew something was wrong. I got a call in the waiting room from the nurse advising me that Tyse is having trouble breathing and that he has a team of doctors around him. I was very nervous.

Twenty minutes later we were able to see Tyse in recovery. Tyse’s oxygen saturation was dropping down to the low 70’s. It is suppose to be 90-100. He looked awful. I haven’t seen him look that bad since he was born. I was very worried. The doctors said that they were moving Tyse to ICU. I wasn’t sure what was going to happen. I had to leave the room because I was getting sick to my stomach.

He wasn’t swallowing any of his secretions. The nurse had to suction him out every minute. She did a good job at not leaving his side and asking for help. Todd and I sat there for two hours trying to get Tyse to swallow. It was very difficult because he wasn’t opening his eyes. We needed him to fight the drowsiness from the anesthesia. We would move our mouth around and say, “mmm” But we needed him to look at what we were doing. When he did swallow we said, “Yea, good swallow.”

He also had a lot of nasal discharge which he has never had before. His nose has always been stuffy, never runny. The nurse had to suction his nose out as well and I have never seen so much discharge in my life. Once his nose stopped runny then he was getting better at swallowing his secretions.

The doctors came back and observed Tyse. He didn’t drop his oxygen saturation in over an hour. He was staying at 98 so the doctors said he could go up to the Infant Unit. I was happy. As we were walking in the hallway of the Infant Unit, I turned to Todd and said, “Wouldn’t that be funny if we were in the room we were before when Tyse had his G-tube surgery.” Todd smiled. Then the nurse who walked us up to the floor asked the other nurse where to put Tyse. The other nurse replied, “That room.” Well, it ended up being the same room as his G-tube surgery. We felt like we were home again.




Tyse and Mr. Cuddles in the hospital

Tyse ended up spending four and half hours in the recovery and 24 hours in the hospital. He is doing well. Thank you for all your prayers. I was very scared about this surgery. The bad thing is adenoids can grow back in but that could take months or years according to his doctor. Also, the doctor informed us that Tyse did have enlarged tonsils, but he is too young to have them removed. He could grow into them. Tonsils help the immune system so doctors do not like to take those out, but if we notice any problems with Tyse then he will have to get those removed. It could be months or years. You never know.

He had his G-tube replaced. It didn’t hurt him at all. It would have but he is on pain medication. His old G-tube was leaking a lot and when we pulled the tube out then his food bubbles up to the button. We found out from the doctor and nurse that that isn’t suppose to happen. Well, he did get a new G-tube, but we still have the same problems. I have to call and see what they want to do. His G-tube is supposed to lay flat in his stomach and instead it is position upwards going towards his rib. He may have to go back to surgery to get it repositioned. I don’t know yet. That may not be a possibility since he has had it in so long and the stomach already grew around it.